We are here to extend our lives by THINKING DIFFERENT

Saturday, November 22, 2008

1st Visit

Well I'm thrilled to report that I have started the TIGER II study - the 2nd Phase III trial of Inspire's Denufosol.

If you want to read about the TIGER I results, the 1st Phase III trial check out: http://www.medicalnewstoday.com/articles/126926.php

So today was the inclusion/exclusion visit. So they did the "what meds are you? what is your genotype? when were you diagnosed?" stuff. They also did:

  • Blood Test
  • Urine sample (test for pregnancy)
  • Basic PFT (make sure FEV1 > 75%)

They sent me home with a nice stipend along with a daily diary to record how I'm feeling every night (are you tired? have you felt feverish? are you coughing a lot?).

So I guess I'll hear back in the next week or so if I fit all the criteria. I'm sure I'll be fine, but I guess they have to go through all the wonderful formalities :)

I'm pretty excited to get this party started. Of course I hope I don't get placebo but that's all part of the game, right? Placebo or drug, I'm still helping to get this drug on the market!

Stay tuned....

Thursday, November 20, 2008

How to get Cromolyn Sodium

So it has taken me FOREVER to get a hold of cromolyn sodium. Who knew that pharmacies wouldn't want to make money off of me by filling my prescription?!?!?!

Bottomline is this: if you want the easiest way to get a hold of cromolyn, go to a Walgreens. There are several Walgreens throughout the US who have bought Cromolyn directly from Teva pharmaceuticals and they should be able to get some for you as well.

If you have trouble, like I did, call Robyn with customer service at Teva. She is FANTASTIC. +1-215-591-3000.

I'm so happy to have this med back!!!!!!!!