I was very fortunate and blessed to get my 1st Kalydeco dose in the mail today.
Luckily my doc was willing to give it a try, even though I don't have G551D (I have DF508 and Di507). And my insurance covered Kaly for a really reasonable co-pay.
I'm really not expecting it to do much, but I figured it most likely won't hurt me so I should just give it a shot.
There are so many things that can influence how genes are expressed, such as modifier genes, exercise (Stanford states that exercising actually increases CFTR function) and the foods we eat. So I think our CF genes don't tell the whole story - another reason why just trying Kaly is a good idea in my mind.
I look forward to keeping you all posted on my progress or lack thereof over the next month(s).
Update so far is that I took my 1st Kaly at around 9pm with my dear friend and parents watching me over video chat.