This email from the CFF ended up in my SPAM email box today, so I'm fearful that this may have been the case with many other CFer's as well.
So just in case you didn't get it, here's the email. Hope you will take the time to fill out the survey:
The Cystic Fibrosis Foundation is concerned about insurance barriers to accessing CF medications. So we can better understand this issue and advocate more effectively on your behalf, we hope you will complete an important survey. To access the survey, just click on the link below. If the link doesn't appear, cut and paste the address in your Web browser. This is strictly survey research and there is absolutely no sales or fundraising involved. Your responses will be kept completely confidential.
If you would like to confirm the legitimacy of this research study, please contact Daniel Klein at (800) 541-4959 x463.