I continue to believe that those CFers who are armed with the most knowledge about their disease are able to make the best choices about their medical care (compliance, starting and stopping medications, participating in clinical trials, pushing their physicians to try new medical devices) lead a better quality of life and are healthier.
The goals of this blog is to educate the greater CF population about anything related to CF.
FIGHT ON
I can not tell you how grateful I am to have found people like yourself who don't sit back and just "do as you are told".
ReplyDeleteThank you for all of your hard work!!
Amy-
ReplyDeletePlease email me, I need to find your EFLOW info and its been deleted from cf.com and nothing here on it yet. Jaelyn's appt is this coming Tuesday and I am making our case for getting the eflow. My email is JDprecious@aol.com, please email me. You are the best source of info I know of on this topic. I need your help!!!!