We are here to extend our lives by THINKING DIFFERENT

Wednesday, March 18, 2009

Daily CF routine

I'm tweeting my daily CF routine to raise awareness of CF. Follow me on the button to your right :)


  1. I like your blog. You have a ton of information on here! I'm going to look into NAC, it sounds promising.

    Have a great day!


  2. Thanks Ronnie - I'm glad I can provide value. FIGHT ON!

  3. Amy-nice idea on awareness raising I might do something like this in my strides letter this year. Thanks

    ok and for the real reason I popped on over--you know that inflammatory hypothesis I had that my old docs didnt buy into well after my first round steroids in teh fall that was to treat the problems I have had since feb 08 my numbers went up big time to 102 and now after the second round from problems in Mar08 (feb/mar are always problematic for me) guess what my FEV1 is???????????

    108 108 108 if I coudl figure out how to make that bigger I would---I kept looking below it because I figured it was my FVC LOL--which by the way is 124 OMG.That was w/o albuterol and the steroids are clear from my system so its not that either.

    Doc and I had a good chat including me getting to the anatomically 'abnormal' range LOL---even when its seomthing good I'm still abnormal he he he.

    Anyway keep up the good work I know you will, and I know you will be seeing that 103 really soon.

  4. you are amazing, Nicole. GREAT news!!!!!